Introducing Lana

Within 5 days of her birth, doctors realised that Lana had Malonic Aciduria, a rare metabolic disorder with only 50 or so other cases worldwide.

The diagnosis was so important for Lana, who needs a special diet to live and which helps her to do all the things she loves… things like dancing, gymnastic, painting – and the colour green!

“Thinking about it now brings tears to my eyes. I’m so grateful for all the help we've received,” says Lana’s mum Danielle.

Your 6,000 steps will help us to find cures for up to 6,000 genetic diseases like Malonic Aciduria – which means that amazing kids like Lana can enjoy all the best things about life with her friends and family.

Thank you!