Walking for William
Since William was born, and then diagnosed with Early Infantile Epileptic Encephalopathy due to an extremely rare mutation in his SPTAN1 gene, we have been inundated by offers of support from all our family and friends, far and wide. Every one wants to help wherever they can, but one of the hardest aspects of a genetic diagnosis like this one is that we really all feel pretty helpless.
“This May, I’m walking 6,000 steps a day to help Children's Medical Research Institute (CMRI) find cures for genetic diseases and childhood cancers.
Walking every single day isn’t going to be easy, but it’s nothing compared to the challenges facing children and families affected by these diseases.
I’m glad to be doing my bit to help step up the pace on much-needed research and I’m hoping you can do the same by making a donation today.”
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